“Living well with Parkinson’s requires a commitment to staying positive and noticing what you can do rather than what you can no longer do. It is possible to have Parkinson’s and live a happy and fulfilling life.”
- Miriam Bram, Parkinson’s Advocate and Ambassador, World Parkinson Congress
Featured Stories
A recent bout of dehydration has been a poignant reminder of my struggle with Parkinson’s.
A few weeks ago, my new disabled parking permit arrived. Up until recently, I had adamantly resisted it.
It can be difficult to raise the bar for oneself when there is no particular motivation to do so… but sometimes there are silver linings in difficult times.
Improv and Parkinson’s would seem like an oxymoron. After all “quick on your feet” is not exactly the image one would conjure when thinking of someone with Parkinson’s…
On April 23, I attended the Parkinson’s Unity Walk. It was the first time in 3 years since the last Unity Walk was held due to the pandemic.
Today, on World Parkinson’s Day, I marvel at the breadth and creativity of global advocacy that defines the Parkinson’s community.
I can taste the sweet satisfaction of a dream seen through. Yes, I took back my trip to Joshua Tree National Park. It was a truly amazing experience.
When we embrace Winter as a time of hibernation, reassessing, and connecting with family and oneself, the cold frigid air can be our friend.
The biggest lesson that Parkinson’s disease has taught me that Covid-19 drove home: Seize the day. You can’t get back time.
My insights from the Face-to-Face Parkinson’s Town Hall event in Manhattan in December, the first Parkinson’s event organized by Mediflix.
My daughter Zoe delves into the characteristics of three important relationships for a person living with Parkinson’s disease.
Sometimes I feel tired. Exhausted by our fight. I wonder how I’ll get the energy to keep ahead of your progression. I have decided we need a new way of communicating.
About Me
I share my personal stories to offer a glimpse into what it is like to live with Young Onset Parkinson’s, revealing honest and intimate reflections. Hearing other people’s stories can be a lifeline for many of us living with this neurodegenerative disease. I hope to inspire and educate people living with Parkinson’s and to create community through shared experiences.
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Links & Resources
Featured Press
In this conversation, I talk about the upcoming 6th World Parkinson Congress in Barcelona July 4-7, 2023 and why it is such a great opportunity to learn about the latest developments, build community and become a Parkinson's advocate.
In our premiere of this series we talk with Miriam Bram, ambassador to the World Parkinson Congress (WPC) and learn about her life with Parkinson's and how the WPC has informed and inspired her journey. Miriam shares her experiences of receiving her diagnosis and strategies and tips she has used, including attending the WPC, to help her live a vibrant life with Parkinson's.